Advocacy in rare disease: Driving technology advances – 2023 Webinar

The webinar “Advocacy in rare disease: Driving technology advances” was sponsored by Fondation Ipsen and produced by the Science/AAAS Custom Publishing Office.

Introduction Advocacy plays a critical role in accelerating progress in rare diseases. As technology advances, collaboration between patient communities, researchers, healthcare systems, and innovators becomes essential to shorten diagnostic delays and ensure scientific breakthroughs translate into real patient benefit. This webinar discussion brought together experts from across healthcare, policy, and industry to explore how data […]

Webinar: How AI-driven insights from RWD accelerate the diagnosis and treatment of undiagnosed patients: a case study

WEBINAR: How AI-driven insights from RWD accelerate the diagnosis and treatment of undiagnosed patients: A case study in alpha-1 antitrypsin deficiency – October 7, 2025

How AI-driven insights from RWD accelerate the diagnosis and treatment of undiagnosed patients: A case study in alpha-1 antitrypsin deficiency   View now: scroll down to watch the recording   Discover how Volv Global, in collaboration with Takeda, Cleveland Clinic, and Komodo, applied AI-driven insights from real-world data (RWD) to rapidly identify previously undiagnosed alpha-1 […]