Rare Disease

Volv Global at ISPOR Global 2026, presenting new research in collaboration with Sanofi

The ISPOR International Annual Conference 2026 brings together global leaders in health economics and outcomes research to explore the future…

2 months ago

Steroids Are the Red Flag in IBD Care That We Keep Ignoring

By Léon Van Wouwe, Clinical Innovation Director, Volv Global Inflammatory Bowel Disease (IBD) management has evolved significantly with advanced therapies…

2 months ago

Reflecting on Rare Disease Day: Awareness is an Act of Love – Guest Article by Rareatives

As our commemoration of Rare Disease Day 2026, we are pleased to present a guest article by Jessica Lynn at…

3 months ago

Finding The Patients We’re Missing – Rare Rebels™ Podcast

Finding the Patients We're Missing Rare diseases often remain undiagnosed for years, leaving patients without timely treatment and care. Despite…

3 months ago

The Patient Voice and AI-Driven Healthcare – Guest Article by Rare Patient Voice

“The patient voice” is shorthand for patients’ and caregivers’ lived experience—captured in a way that can inform decisions. In other…

4 months ago