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Category: Stakeholder

Press release: Machine Learning Maps and Discovers Clinical Endpoints in Pompe Disease Using Real-World Data

- 01/06/2026

Volv Global at ISPOR Global 2026, presenting new research in collaboration with Sanofi

- 31/03/2026

Steroids Are the Red Flag in IBD Care That We Keep Ignoring

- 19/03/2026

Advocacy in rare disease: Driving technology advances – 2023 Webinar

- 02/03/2026

Reflecting on Rare Disease Day: Awareness is an Act of Love – Guest Article by Rareatives

- 23/02/2026

Closing the diagnostic gap: stopping cancer patients from losing a winnable battle

- 18/02/2026

Finding The Patients We’re Missing – Rare Rebels™ Podcast

- 18/02/2026

Uncovering the uncommon: Advances in Rare Disease diagnosis – 2024 Podcast

- 05/02/2026

Chronic Obstructive Pulmonary Disease: Why We Need Better Patient Identification for 21st-Century Treatments

- 28/01/2026

The Patient Voice and AI-Driven Healthcare – Guest Article by Rare Patient Voice

- 22/01/2026