Rare Disease

Unlocking the Full Impact of Breakthrough Therapies in Breast Cancer Through Earlier Detection

By Léon Van Wouwe, Clinical Innovation Director, Volv Global   New data from Roche’s Itovebi (inavolisib) combined with Pfizer’s Ibrance…

11 months ago

Progressive Pulmonary Fibrosis: Solving the Puzzle of Poor Disease Control

By Léon Van Wouwe, Clinical Innovation Director, Volv Global   Introduction Progressive Pulmonary Fibrosis (PPF) is a severe clinical condition…

11 months ago

A Rare Disease Day Message from Dr. Al Freedman

On the occasion of international Rare Disease Day 2025, we are beyond thrilled to host the voice of patient advocate…

1 year ago

Finding Patients for Rare Diseases: A Case Study

By Christopher Rudolf, Volv Global An AI Methodology for Finding Patients with Rare Diseases: Volv Global’s inTrigue Finding patients with…

2 years ago

Case Study: Detecting signs of Fabry and Pompe disease in UK clinical data

Volv, supported by Sanofi, and working with Optimum Patient Care, and collaborating with a specialist Consultant Clinician, is performing research…

3 years ago

Tamsyn’s Experience: Poland Syndrome and the problems beyond diagnosis

By Christopher Rudolf, Volv Global Rare disease patients and the journey to diagnosis, treatment, and support For patients with rare…

5 years ago

Paul’s Experience: Narcolepsy and diagnosis – an 8 year odyssey

By Christopher Rudolf, Volv Global Introduction Rare Disease Day highlights the voices, stories, and experiences of millions of people living…

5 years ago