Why Do So Many People Wait So Long for a Diagnosis?
Multi-system diseases can mimic many more common conditions. Symptoms like fatigue, pain, or digestive problems are often treated separately — without recognising they might share the same root cause.
People also adapt to chronic discomfort, assuming their symptoms are “normal” or just part of ageing. For rare or inherited conditions, even healthcare professionals may not immediately suspect a genetic link.
Awareness and communication are key. By clearly noting patterns and sharing them with your doctor, you help make invisible symptoms visible.