Insights

Tamsyn’s Experience: Poland Syndrome and the problems beyond diagnosis

By Christopher Rudolf, Volv Global Rare disease patients and the journey to diagnosis, treatment, and support For patients with rare…

5 years ago

Paul’s Experience: Narcolepsy and diagnosis – an 8 year odyssey

By Christopher Rudolf, Volv Global Introduction Rare Disease Day highlights the voices, stories, and experiences of millions of people living…

5 years ago