White Paper: The Path to Rare Disease Clinical Trial Innovation

3 years ago

By Volv Global SA and WODC EU contributors   Executive Summary For decades, the pharmaceutical industry has faced the same…

Tamsyn’s Experience: Poland Syndrome and the problems beyond diagnosis

5 years ago

By Christopher Rudolf, Volv Global Rare disease patients and the journey to diagnosis, treatment, and support For patients with rare…

Paul’s Experience: Narcolepsy and diagnosis – an 8 year odyssey

5 years ago

By Christopher Rudolf, Volv Global Introduction Rare Disease Day highlights the voices, stories, and experiences of millions of people living…